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Galderma Global Study Reveals True Burden of Rosacea and Encourages Healthcare Professionals to Look 'Beyond the visible'

Geschrieben am 01-06-2018

Lausanne, Switzerland (ots/PRNewswire) -

Galderma today released the findings of a global survey
highlighting the need for dermatologists and doctors to proactively
open a dialogue with patients about the true burden of rosacea and
ways in which they can work together to achieve 'clear' (IGA 0)
skin*. In the form of an expert-authored report entitled Rosacea:
Beyond the visible, available on the British Medical Journal (BMJ)
website (http://hosted.bmj.com/rosaceabeyondthevisible), the data
reveals the true extent of the psychosocial burden of the disease.
Every second patient reported that they would potentially be willing
to trade six months or more of their life to cure rosacea.[1]
Additionally, over half of those who have worked at least one hour in
the past seven days (55%) admitted that their health problems have
impacted on their work productivity.[1]

To view the Multimedia News Release, please click: https://www.mul
tivu.com/players/uk/8341651-galderma-global-study-rosacea/

People who are 'clear' also tend to have fewer doctors visits and
say that their health problems had no effect (rated 0 - 2 out of 10)
on their work productivity vs. those who were 'almost clear'.[1]
Despite the availability of treatments and multiple healthcare
professional (HCP) visits, only 14% of patients surveyed rated
themselves as 'clear' of symptoms at the time of reporting,
highlighting the extent of the unmet need.[1] People who were 'clear'
were significantly less likely to be forced into modifying their
daily behavior even in comparison to those who were 'almost clear'
(21% vs 16% p<=0.05).[1]

Rosacea affects more than 40 million people worldwide and is most
common in people aged between 30 and 50.[2] It is a visible and
relapsing condition, meaning that patients experience periods of
flare-ups, and every individual's experience is different, making it
a complex disease to treat. Rosacea: Beyond the visible offers
useful insights into the emotional, psychological and societal impact
of the condition. According to the findings, there is a
disease-related impact on patients' quality of life. Rosacea can have
a high impact at any severity, with 82% of people surveyed feeling
that their rosacea is not totally controlled and 86% substantially
modifying their behavior and daily lives to avoid triggering
flare-ups.[1]

"This research alerts us to the reality that people with rosacea
can feel like they are stuck in an unwinnable situation - judged on
their appearance, but also worried they will be blamed or viewed as
superficial if they seek help. We need to open the discussion
surrounding the burden of rosacea and ensure people are comfortable
talking about the impacts this illness can have on their lives.

"We can help make a difference by opening the conversation with
patients on the impact of rosacea to identify the more vulnerable
'high burden' individuals and implement a tailor-made treatment
approach," comments Dr Jerry Tan, Adjunct Professor, Western
University, Windsor, Ontario, Canada and one of the study authors.

The survey asked 710 patients diagnosed with rosacea and 554
dermatologists and general practitioners (GPs) in six different
countries (France, Germany, Italy, UK, Canada and the US) questions
about their experience of living with, or treating patients that are
living with, rosacea.

Key findings include:

Addressing the impact of rosacea remains an unmet need

- The burden of rosacea goes beyond what patients feel physically and
emotionally, the knock-on effect also impacts wider society and
medical systems[1]
- 86% of patients modify their behavior to manage their symptoms,
with one in five making substantial changes to their daily life
(such as avoiding social interaction, activities with friends
etc)[1]
- People who report that rosacea has a very large impact on their
life visit their doctor more than twice as often as those whose
quality of life is less severely impacted (9.9 ±10.6 vs 4.4 ±3.2
visits per year)[1]
- The number of patients visiting an emergency room (ER) in the past
12 months as a result of their rosacea varied from 13-26% across
different countries[1]
- More than half of rosacea patients who worked in the past seven
days for at least one hour (55%) report that their health problems
affect their work productivity[1]

There is a need to open the dialogue between dermatologists/GPs
and patients on the burden of rosacea

- People with rosacea may feel embarrassed or ashamed to talk about
their disease burden with over a third (37%) saying friends and
family did not understand their condition[1]
- As people can be reluctant to discuss the true burden of their
disease, physicians can overestimate the impact of symptoms
typically associated with rosacea, but underestimate less-visible
or well-known symptoms (such as stinging, burning, itching and
pain)[1]
- 82% of patients feel that their rosacea is not totally
controlled[1]

Aiming for 'clear' can help relieve the burden of rosacea

- Only 14% of people with rosacea rated themselves as 'clear' of
symptoms at the time of the global survey. This decreased to only
1% rating themselves 'clear' when asked to consider the last
year[1]
- The extra step of reaching 'clear' can make a difference for the
people who are able to achieve it. 'Almost clear' isn't always good
enough. It might only take one pimple or pustule appearing on their
face to upset a rosacea patient's day[1]
- Less than half of 'clear' patients reported rosacea had no impact
on their quality of life, significantly more than even 'almost
clear' patients (49% vs 30% p<=0.05)[1]
- 'Clear' may also mean rosacea controls each person's life less.
People who were 'clear' were significantly less likely to be forced
into modifying their daily behavior even in comparison to those who
were 'almost clear' (21% vs 16% p<=0.05)[1]
- People who were 'clear' also tend to have a lower number of doctor
visits even compared to those who were 'almost clear' (4.8 ±5.3 vs
5.7 ±7.5 per year p=NS)[1]

Healthcare professionals should aim to identify more vulnerable
'high burden' patients, to implement a more individualized patient
approach

- Patients who report that rosacea has a severe impact on their
quality of life (DLQI>10) are typically younger and are
significantly more likely to be working, male and have stinging and
burning skin sensations vs DLQI<=10 patients[1]
- Future investigation identifying contributing risk factors may
reveal useful markers or insights on high burden patients that can
be used in clinical practice

For related multimedia resources, please visit
http://www.epresspack.net/galderma-rosacea

* The success of rosacea treatment is usually defined as a score
of 1 ('almost clear') or 0 ('clear') on the 5-point Investigator
Global Assessment (IGA) scale. Several studies have shown that
patients who achieve 'clear' (IGA 0), a complete reduction in
symptoms, experience an extended time to relapse and an improved
quality of life compared with patients who are 'almost clear' (IGA
1).[3]

About the BURDEN survey and the Rosacea: Beyond the visible
online report

The BURDEN survey was developed by Kantar Health as a
self-administered online survey and supported by Galderma.
Participants were recruited using the Kantar online panel. To
maximize the sample size no quota was set up. Therefore, the sample
is not representative of the rosacea population of each country;
consequently, the results of this study could be affected by
selection bias and cannot be inferred to the whole rosacea
population. Rosacea: Beyond the visible was developed under the
direction and sponsorship of Galderma International, survey was
conducted by Kantar Health with writing support provided by Emma
Waring, Havas Life Medicom.

About Rosacea

Rosacea is a common inflammatory skin disease that presents
variable clinical characteristics, of which the most common are
flushing, permanent erythema, and inflammatory lesions. It mainly
affects the central areas of the face, such as the cheeks and nose.
The disease can affect both adult men and women, usually after the
age of 30. Additionally, symptoms such as stinging, burning and
increased sensitivity of the skin are common. The eyes are often
affected, and might present as red, dry or itchy.

Although the cause of the disease is still under debate, various
trigger factors are known, including spicy foods, alcohol, emotional
stress, sun/UV-exposure, hot baths and beverages. Demodex, generally
harmless mites, can also be found in the skin in an elevated quantity
in people with rosacea.

Rosacea may worsen over time if left untreated. People that
suspect they suffer from rosacea should visit their dermatologist or
healthcare provider for diagnosis and discuss what treatment is right
for them. Because rosacea is a highly visible disease, it is known to
cause embarrassment and anxiety in some patients, which in turn may
cause frustration and have a negative impact on their social life.

About Galderma

Galderma, Nestlé Skin Health's medical solutions business, was
created in 1981 and is now present in over 100 countries with an
extensive product portfolio to treat a range of dermatological
conditions. The company partners with health care practitioners
around the world to meet the skin health needs of people throughout
their lifetime. Galderma is a leader in research and development of
scientifically-defined and medically-proven solutions for the skin.
For more information, please visit http://www.galderma.com

References:

1. Rosacea: Beyond the visible online report, BMJ Hosted Website (
http://hosted.bmj.com/rosaceabeyondthevisible). Last accessed:
June 2018
2. Shanler S, Ondo A. Successful treatment of the erythema and
flushing of rosacea using a topically applied selective a1
adrenergic receptor agonist, oxymetazoline [abstract taken from J
Am Acad Dermatol. 2008;58(2): AB9]. Presented at: American Academy
of Dermatology 66th Annual Meeting; February 1-5, 2008; San
Antonio, TX
3. Webster G et al. J Dermatolog Treat. 2017;28(5):469-474

(Logo: http://mma.prnewswire.com/media/554005/Galderma_Logo.jpg
)

Video:

https://www.multivu.com/players/uk/8341651-galderma-global-study
-rosacea/ (https://www.multivu.com/players/uk/8341651-galderma-global-study-rosacea/)



ots Originaltext: Galderma
Im Internet recherchierbar: http://www.presseportal.de

Contact:
Sébastien Cros
Global Communications
+41-21-642-76-94
media@galderma.com

Original-Content von: Galderma, übermittelt durch news aktuell


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